Today was a check up for my daughter, she’s now on 6 monthly oncology appointments and 3 years into remission. You would think that means she’s pretty much out of the woods but after her cancer diagnosis she tested positive for a PTEN gene disorder and along with other markers was diagnosed with Cowden Syndrome. Put in simple terms she has a gene defect in a tumor suppressor gene which means she is at high risk of both benign and cancerous tumors. The risks are quite harrowing:-
Lifetime Risk with PHTS (%)
Average Age at presentation
Breast 85 % – 40s
Thyroid 35 % – 30s-40s
Renal Cell 34 % – 50s
Endometrial 28 % – 40s-50s
Colon 9 %- 40s
Melanoma 6 %- 40s
My daughter was 10 when she developed thyroid cancer.
The check up went well, there is a new lump in her breast they want to look at but aren’t too concerned.
Last year I undertook a fundraising year of 260 CrossFit workouts. It was tremendous and the amount of support I received from friends and family was wonderful. I wanted to do a second one starting on the 3rd anniversary of her radiation treatment. Of course I couldn’t do the same thing again and what does and doesn’t contribute to all of our risks to cancer, so I chose one product that has been proven to have links to cancer (alcohol) and one that is often accused wrongly of being linked (sugar) – don’t get me wrong I know sugar is guilty of many, many things. But feeding cancer has no scientific base. I also figure to get people to sponsor me I have to suffer and of course being my daughters full time carer as cancer left her with Chronic Fatigue Syndrome and oostural Orthostatic Tachycardia syndrome I can’t really take on an away from home challenge.
Anyway so that’s us up to date with where I’m at. Back to today. The only difficult point was eating out but thank heavens there is a wonderful whole food vegan cafe in Newcastle (you don’t need to be vegan to eat plant foods)
They were wonderful and I had a delicious but burger after checking ingredients with the guys.
What I ate today in pictures and words- I was better at the photos today!
Soaked oats, coconut milk, almond milk, apple, blueberries.
Nut burger, roast potatoes, coleslaw, green leaves.
Eggs, smoked salmon.
Date bar, 100 % dark chocolate with orange oil
Total sugars and breakdown