More hysterectomy tales, a nasty illness, adopted cat and a cheat day!

It’s been a tough month since I posted last. I was coming along amazingly after the hysterectomy, walking every day starting to get on with life. Then two weeks after I came down with some form of illness. It’s hard to say if it was a virus plus an ear infection or a really serious ear infection. All I know is that for 6 days I did nothing but sleep and throw up and my balance was so off moving was like I was drunk. I was sleeping for around 18 to 20 hours a day, the time I wasn’t asleep I was curled up on my left side feeling so unwell I was wishing I was asleep. It was awful, By day 6 my husband was so worried that he called an emergency doctor as standing up involved falling over basically every time. Because I had had an operation so recently she too was concerned in case I had a sepsis brewing somewhere. I ended up in hospital. Thankfully they were able to establish that I was in no danger, they also figured out that as part of what was going on my vestibular nerve in the inner ear had been affected hence the inability to stand or move. I have had a chronic ear infection for months so it’s likely that had spread. During that week literally the only thing I could hold down was a couple of slices of white bread a day. I must admit I was not considering the challenge at this point, my body was exhausted from surgery and then illness. I think this is an allowable time to not try to read labels.

After antibiotics the worst of the illness seemed to clear up though my inner ear is still affected, I was back at work during the tail end of feeling awful which was around 4 weeks post op. I also had a phd proposal to get in to the university within 5 days, a completely new one I had not even started. By the end of that week I was exhausted and by the end of this last week with work, working more on my proposal, exercise and homeschooling I’m pretty exhausted too. I’m glad I’ve managed to get back into gentle exercise at the gym and running (run/walk/run), this past week I had 2 gym sessions and 2 runs which 6 weeks post op I am happy with.

I am functioning ok during the day but by the time my day ends at around 7 and I have time to sit down all I want to do is go to bed and I end up asleep by 9. It’s hard to tell if the tiredness is a post infection issue, a post op issue or a combination of the both. I am hoping it will abate soon as my life is not one that has many opportunities for rest which makes dragging myself around slightly miserable.

Monday ended up being a cheat day, I had Charlotte at the hospital in Newcastle when all of a sudden I came over so shaky and weak that I had to have some form of instant energy. I have paid the £20 fine into the fundraising in accordance with my rules!

Oh and we have adopted a stray we are calling Bertie, when I say adopted I think he just decided he lived here.

My hysterectomy and oorphectomy experience – part 2

Day 11 – Generally feeling good, I slept better last night. My abdomen is still tender but ok. I’m now working on walking upright again, with abdominal surgery there is of course a natural need to hunch a little for the first few days to protect the incisions. Now I’ve healed enough to want to work on posture and holding my core in while I walk. I’ve been doing pelvic floor exercises since day 3, now I’m adding in gentle core exercises such as bridge, single leg table top and double leg table top. I’m still wearing compression socks but have some fun ones now.

I have a very definite headache but I have a feeling it’s not connected to the hysterectomy and more likely connected to middle son who has been coughing his lungs up for the past few days and complaining of a sore throat. Without sounding too unsympathetic, boy the last thing I need right now is a cold. Coughing and sneezing would not be good!

My biggest concern right now is when the vaginal stitches dissolve, the consultant mentioned that there is 1 to 3 % risk that when they do a scab can fall off from the incision that causes serious bleeding. It’s around the 10 day mark the stitches come away so round about now! After our past few years of medical rubbish the small risk seems huge!

Day 12 – I found a large lump in my left breast last night, around 2cm that was a hell of a shock. Because we are with Bupa I’m seeing someone this afternoon. Back to the hospital it is then!

Day 12 – later that day, thankfully just a cyst a 3 cm one! The guy drained over 7 ml of ick from it. Ew.

Day 13 – Slightly tired today, but I was invited out for lunch at a friend’s house with a group of fabulous women. I feel very blessed to have some genuinely amazing women in my life. Having strong loving women in your life makes such a difference. The rest of the day was cooking, walking then resting.

Day 14 – I slept better than I have been for a while, I only woke up a couple of times to pee. I’m assuming the peeing a few times a night is a combination of pelvic floor damage and low estrogen. I woke up feeling sick though, I hope it’s just a thing and not that I’ve picked something up!

My abdomen outwardly continues to heal well and the incisions are slowly fading.

Day 15 – I started spotting a little, nothing dramatic and it is around the time that stitches would be dissolving and it can happen as part of that process. I’m watching and waiting, if it gets worse I’ll of course go to a doctor.

Day 16 – still spotting and my waswomb (the bit where my womb was but no longer is) is sore today. I think it’s part of the healing where nerves are waking up. I’m feeling tired generally and my joints are aching, I feel quite emotional today also, like I’m on the verge of tears for no reason. I’m not sure my hrt is quite right. Really not feeling enthusiasm for life today! I’m seeing the hrt specialist the week after next, hopefully he will be able to tweak things to get me back to feeling normal. My husband is away for work and I’m very much feeling the pressure of needing to be “normal” and keeping on top of things when really I’m very far from normal as yet.

Sugar and booze wise I’ve stuck with my commitment to this fundraiser even though god I would love to have an easy option right now food wise. Or an eclair. Like I really want an eclair so badly right now.

Cat is helping by trying to trip me on the stairs.

If you find anything of interest or use in my blog please consider sponsoring me and help work towards a cure for Cowden Syndrome. Thank you.

https://www.justgiving.com/fundraising/sugarfreeyear

If you’d like to follow me on Facebook that would here:-

https://www.facebook.com/cure4Cowdens

Hysterectomy positivity, why and how it relates to Charlotte

A few friends have been surprised by my attitude towards my hysterectomy. There are a few reasons. Firstly I was utterly fed up with bleeding all the time. I was tired and drained. I also worried about the risk of the thickening endometrial layer flipping into malignancy. So to a large degree it was a no brainer.

Now once this was decided I could have taken 1 of 2 approaches, I could have become very distressed by the whole the matter or I could take it as positively as possible.

Here’s the thing, my daughter knows already that unless a cure is found for Cowden Syndrome and PTEN disorders she will have to have the very same operation. Her risk of endometrial cancer is too high to not. She will be far far younger than I have. Most likely in her 30s. If she saw me breaking down how would that affect her? I won’t let her worry any more about the future she faces than she has to already so I’ll continue to focus on the positives of this change.

Plus more periods or pms is definitely a reason to celebrate!!

If you find anything of interest or use in my blog please consider sponsoring me and help work towards a cure for Cowden Syndrome. Thank you.

https://www.justgiving.com/fundraising/sugarfreeyear

If you’d like to follow me on Facebook that would here:-

https://www.facebook.com/cure4Cowdens

My hysterectomy and oorphectomy experience – part 1

Day 1 – operation day, it all went smoothly apart from not being able to find veins to put the cannula in. Ouch on both hands. The op itself was vaginal but laproscopically assisted. I woke up confused, sore and hungry. I had pre-ordered food that sounded sugar free. That’s the best I can do in hospital. I refused to use the bedpan and managed to get to the loo when I wanted to pee. I wanted to be on my feet as soon as possible. The staff were lovely apart from one of the night nurses who was well very classic “why are you bothering me” night nursey.

Day 2 – busting out of here..”hi doctor I’m fine yup I’ve peed, all is good, bye bye now” well it went a little like that with the addition of them ultrasounding my bladder to make sure I could actually pee. Arrived home and went for a very very very slow walk, rested then walked again. I had been given some oral morphine for the first couple of days. I just took it at bed time. The rest of the day I alternated ibuprofen and paracetamol. Oh I also added a new rule to my list of rules for this fundraiser medicine with sugar in is allowed. No way on god’s earth I was going without painkillers on the first night! Food wise it’s lots of veggies and good fats for skin repair and inflammation reduction. I’ve always believed that diet is do important for pretty much everything. I don’t assign magical properties but it definitely forms a building block of health.

Day 3 – I pooped and it didn’t hurt and my insides didn’t fall out! Result. The air in my chest and wind generally is bothering me. The trapped wind is making my abdomen incredibly uncomfortable as it’s around where my uterus was removed. The feeling of air in my chest cavity is just bizarre. Did you know they inflate you with laproscopic surgery so they can see inside? Very clever but after feels really weird.

Day 4 – Generally feeling well, I’m walking daily a couple of times a day making sure I’m at a pace that doesn’t hurt. My brain is not working on full power and my short memory is shot.

Day 5 – Still feeling ok and mood wise very stable and but hot flushes are hitting with a fury. I’m now just taking paracetamol and ibuprofen at bedtime. As I’m upping my walking I want to feel connected with any pain so I know when to stop. I am still of course tired at various points in the day. Imy the wonderful woman covering my classes popped by with a card from my students which was super sweet.

Day 6 – walking is going well, I’m covering 3 to 4 miles a day at the moment. I’m sticking with routes that loop back close to my house in case I get tired and need to go home asap.

Day 7 – It’s my daughter’s birthday tomorrow so I need to bake cakes, this along with my little walks left me very tired. An amazing friend however dropped by with food so after I’d finished the cakes I didn’t have to cook such a huge help and relief. I’m astounding how little I’ve bruised, my surgeon must have been bloody good at his job! Cake wise I went for the same I made for my birthday, sugar free and raw food goodness

Day 8 – Tired after birthday prep but Charlotte wants to have a quiet hanging out day thank god! She also wants a take away for her birthday food, even better! This is exciting for Charlotte because she’s never had take away food. Um ever. I’ve always home cooked partly because I want to feed them all healthily and partly because I think take out is very expensive for a family of 5 compared to what I can cook in a short time. Tonight I’m going for it though. Again luckily because of my amazing friend Ali I didn’t have to worry about what I was having. I had the best curry and rice possible in the fridge. Oh and did I mention she made it all sugar free. I started on estrogen cream this morning. The consultant said I could once back to “normal” activity. I’m walking around 4 to 5 miles a day now so I’ll count that as normal.

Day – 9 hot flushes still coming thick and fast and I’m waking up waaaay too early. This is bothering me. More birthday celebrations, ate too much felt great for it though. The trapped wind and abdominal air is pretty much gone and my stomach is back to nearly flat.

Day -10 Still hot and bothered I’m genuinely wondering if this bio I’d stuff is worth the bother or if I should just take the pills from the doctor. I woke up at 5.30 after not enough sleep the tiredness ran through the day. Right now as I sit here all I want to do is go to sleep. On the bright side I am back to walking at a reasonable pace.

I stopped the bio id cream and took an elleste pill instead. I also took behind the counter antihistamine based sleeping pills. Of course this is a very short term solution.

I had a look at Garmin and apparently walked 25 miles in the last 7 days and did 75,000 steps. Mind you my way of dealing with most life stressors is to go for a walk and in the past year a run. I’ll be leaving the running for a while. Not sure jiggling my insides up and down right now would be a great idea.

I have stuck with the sugar free the medication being the exception, and of course hospital food not being an entirely known quantity. Even though right now I’d kill for a bar of dairy milk. I haven’t though thoroughly logged in my fitness Pal. There were some days it was just too much mentally.

Disclaimer- I am not suggesting in any way that anyone follows what I have been doing. This is simply my experience. Before surgery I was exercising 6 times a week, a combination of gym, running and yoga. For me getting back on my feet and moving was the natural thing to do. Each individual needs to listen to their consultant and their body. My consultant cleared me for walking immediately as much as I liked. Mind I’m not sure he entirely understood how much I like walking!!

If you find anything of interest or use in my blog please consider sponsoring me and help work towards a cure for Cowden Syndrome. Thank you.

https://www.justgiving.com/fundraising/sugarfreeyear

https://www.justgiving.com/fundraising/sugarfreeyear

If you’d like to follow me on Facebook that would here:-

https://www.facebook.com/cure4Cowdens

Hangover dreams

I had such a strange dream last night, I had been out with an old friend at a wedding and drunk way too much. Then part way through the dream I remember I’m fundraising so don’t drink this year, I’m really relieved as it means I won’t have a hangover as I can’t possibly be drinking. I slide back into the dream and it’s the day after and I feel dreadful, really really dreadful.

I was so relieved to wake up and realise that no I hadn’t gone off track and no I didn’t have a hangover.

The strange thing is even before the sugar and booze free challenge although I enjoyed a little gin or wine occasionally I can’t actually remember the last time I was drunk enough to be hungover.

Very strange!