Exercise experimentation and sugar free struggle.

I found out at a patient meeting Charlotte and I went to last week (I’ll post about it properly tomorrow when I have time) that her low muscle tone is most likely part of her PTEN disorder (Cowden Syndrome). Now I’ve always struggled to put muscle on too but not to the same degree as Charlotte till perimenopause. Which puts us at a similar place.

My coach Hesus and I are going to experiment with ways to build strength in me (a naturally non muscular) person and then translate that to Charlotte as she gets well enough to start weight bearing exercise.

Weight bearing exercise is extremely important for her, not just because of her hyperflexibility and lack of strength. She had thyroid cancer which meant the removal of her thyroid, it also means she is kept on a higher dose of thyroxine in order to keep her risk of thyroid cells regrowth and subsequent cancer low. This carries with it a big risk of osteoporosis. Exercise will be vital then for her bone health.

She also along with chronic fatigue syndrome has POTs (postural orthostatic tachycardia syndrome) which is greatly helped be exercise.

Today was my first day of this new program. I’m excited to be starting something that might help her.

I did however find it hard. It’s tough to do things we aren’t good at, there’s a certain amount of mental struggle. But I believe it will be worth it.

My younger son was going to come to join in but couldn’t make it. He did come home for dinner though and wow he’s looking so well. His skin is amazing. I can’t wait to see how well he looks a few weeks further down the line.

Speaking of dinner now here’s my struggle. Calories. On training days to gain strength I should eat at least 2000, sounds simple. Sugar free it’s actually not. 2000 calories of whole foods is actually a heck of a lot of food. I’ve hit the calories but not quite enough carbs and honestly I couldn’t eat any more if you paid me!!!

This evening Jasper and I went for a wood walk, it’s a few minutes drive from our house and lovely and cool on a hot day like this. Plus it’s very pretty.

If you find anything of interest or use in my blog please consider sponsoring me and help work towards a cure for Cowden Syndrome. Thank you.


Don’t drink, don’t smoke what do ya do? Subtle innuendos follow

“Don’t drink don’t smoke what do ya do” well not caffeine any more that’s for sure.

I’ve not been sleeping well, I realise it’s stress but of course the best thing to do is eliminate anything that is within my control. So it’s good bye coffee. Ugh so sad.

I’m going to be left with nothing to give up by the end of this year. I’ll need to think of a seedy vice for a hobby.

Right now I’m cooking a weeks worth of food for my elder son. He is working long hours so I’m doing his meal prep. I pointed out this the last time he whined about being tired. That he’s literally got staff who do his washing, cooking, shopping etc so he can shhhush. Joking aside I don’t mind. The tricky thing is he needs huge amounts of calories. He’s a large muscular man on his feet all day. So I’m cooking the opposite to how I normally would, it’s all the almond butter and coconut oil and oh my god it smells amazing.

No particular adventures in no sugar land, I’ve found a “frozen yogurt” I like. Basically 100g blueberries and 100g goat yoghurt blended together. It’s good! Really good.

It’s also a very important day today. It’s Jasper’s coming home day. Happy coming home day J dog.