Tag: Childhood Cancer

Cure 4 Cowden’s – logo & t-shirt design

My wonderful, talented friend Linda over in Portland who designed the logo for Cure 4 Cowdens last year has been busy working on a t-shirt design for this year. I absolutely adore it. What do you guys think? The plan is to do the same as last year, take orders for size (possibly colour if

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First run – since broken toes, feeling jaded with this project BUT exciting new t-shirts!

This afternoon I went for my first run since I broke 2 toes a month ago. Obviously I kept it gentle and ran 2 mins then walked 45 seconds. It was blisteringly hot and I was so worried about getting back into running but it was actually awesome. I really enjoyed it, J dog loved

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Exercise experimentation and sugar free struggle.

I found out at a patient meeting Charlotte and I went to last week (I’ll post about it properly tomorrow when I have time) that her low muscle tone is most likely part of her PTEN disorder (Cowden Syndrome). Now I’ve always struggled to put muscle on too but not to the same degree as

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Trying to keep busy and holy hormone hell

So the past day or so I’ve been trying to keep busy in the midst of all this drama/trauma. It’s affecting my stress levels and blood pressure which I don’t want to start becoming a problem. My hormones are also all over the place like ridiculously so. I’ve just had a 17 day cycle and

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What is Cowden Syndrome?

Put simply Cowden Syndrome is one of a number of tumor related disorders linked to the PTEN gene. They all fall under the the term Pten Harmatoma Tumor Syndrome, the PTEN gene is one of a number of tumor suppressor genes. They are as important as they sound, our bodies are remarkably clever and have

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