My wonderful, talented friend Linda over in Portland who designed the logo for Cure 4 Cowdens last year has been busy working on a t-shirt design for this year. I absolutely adore it. What do you guys think? The plan is to do the same as last year, take orders for size (possibly colour if
Tag: Genetic Cancer
I found out at a patient meeting Charlotte and I went to last week (I’ll post about it properly tomorrow when I have time) that her low muscle tone is most likely part of her PTEN disorder (Cowden Syndrome). Now I’ve always struggled to put muscle on too but not to the same degree as
So the past day or so I’ve been trying to keep busy in the midst of all this drama/trauma. It’s affecting my stress levels and blood pressure which I don’t want to start becoming a problem. My hormones are also all over the place like ridiculously so. I’ve just had a 17 day cycle and
Last night I slept through the night for the first time I can remember unmedicated (there have been short periods of time across Charlotte’s cancer journey where I’ve used sleeping pills) No shame about it either). Anyway I have in my mid 40s accepted waking usually a couple of times a night as part of
Today was a check up for my daughter, she’s now on 6 monthly oncology appointments and 3 years into remission. You would think that means she’s pretty much out of the woods but after her cancer diagnosis she tested positive for a PTEN gene disorder and along with other markers was diagnosed with Cowden Syndrome.