My wonderful, talented friend Linda over in Portland who designed the logo for Cure 4 Cowdens last year has been busy working on a t-shirt design for this year. I absolutely adore it. What do you guys think? The plan is to do the same as last year, take orders for size (possibly colour if
Put simply Cowden Syndrome is one of a number of tumor related disorders linked to the PTEN gene. They all fall under the the term Pten Harmatoma Tumor Syndrome, the PTEN gene is one of a number of tumor suppressor genes. They are as important as they sound, our bodies are remarkably clever and have
Today was a check up for my daughter, she’s now on 6 monthly oncology appointments and 3 years into remission. You would think that means she’s pretty much out of the woods but after her cancer diagnosis she tested positive for a PTEN gene disorder and along with other markers was diagnosed with Cowden Syndrome.
So I have been terrible in updating this blog, the challenge I set myself plus work looking after poorly girl, homeschooling etc frankly have left me exhausted. I have however reached over the 200 mark! I can run now, I’m not a brilliant runner but I can do it and even more excitingly I am
Day 16/260 Well I know why yesterdays was such a bad workout, turns out I’ve picked up a bug of some kind. Probably when I was in hospital with my 15-year-old son on Monday. It’s one of those ones where you feel lousy and want to do nothing other than curl up and nap, except